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Resources
The Cochlear Implant Awareness Foundation (CIAF) strives to provide timely, pertinent information to potential and current recipients of cochlear implants. The following links provide resources for dealing with the challenges of hearing loss and making informed decisions concerning implants.

Books and Videos

The Guide to Cochlear Implants for Parents and Educators (guide book and CD)
The guide and accompanying CD offers a comprehensive look at the way the cochlear implant functions. It describes ways educators, parents, and other professionals can check the system to ensure it is functioning optimally and how to use its many features effectively in helping a child acquire and use spoken language.

Cecilia's Story (video--open captioned, 47 minutes)
This documentary follows Cecilia and her family from birth through age 8 as they make communication and technology decisions related to Cecilia's deafness. Using Cecilia's story as a vehicle, this video covers many of the issues families face in making decisions for their deaf child related to communication choices and whether or not to consider a cochlear implant, as well as going through the implantation process.

Hearing Your Life (video--open captioned, 34:55 minutes)
This documentary follows the lives of four adults before and after receiving the Clarion HiResolution cochlear implant. Each individual discusses the impact deafness has had on their lives and how much they benefited from getting a cochlear implant. This video describes the process of hearing and impact of hearing loss as well as how the cochlear implant works. 

Infant-Toddler Meaningful Auditory Integration Scale (IT-MAIS)
The IT-MAIS is a parent report checklist to document a young child’s use of sound in the natural environment. Ten questions with an accompanying rating scale are provided addressing such areas as “Is the child’s vocal behavior affected while wearing his/her sensory aid (hearing aid or cochlear implant?” and “Does the child spontaneously respond to his/her name in quiet with auditory cues only when not expecting to hear it?”. The scale helps document the small steps in development of listening skills. This scale is widely utilized and available at no charge through Advanced Bionics. 

Tools for Schools: Helping Children with Cochlear Implants Succeed in School
Advanced Bionics created a new division called the Educational Division of the Bionic Ear Association (BEA-E). Their first initiative is: The Tools For Schools Launch Kit. The Kit includes:

  • Tools for Schools literature series
  • The Bionic Buddy movie on DVD or VHS
  • A poster on how a cochlear implant works
  •  The Educator’s Guide CD Presentations
  •  The Guide for Cochlear Implants for Parents and Educators Services handouts

To order contact: toolsforschools@advancebionics.com

Online Training & Education Center
Advanced Bionics offers online training courses as well as live courses.  For upcoming and recorded online courses as well as a listing of live courses, click here

Introduction to Cochlear Implants (video--closed captioned, 15 minutes)
This is a videotape developed in 2002 that provides an excellent overview of the anatomy and physiology of the ear, cochlear implants and how they work, the surgical procedure, and the post-surgical hook up. While specific to the Nucleus brand implant, this tape provides a general overview of implants regardless of the manufacturer. 

Nucleus 24 Contour: The Shape of Things to Come (video--also available in Spanish)
This promotional/educational videotape highlights three families with an implanted family member: a mother of two teens implanted as an adult, a 3-year-old twin implanted at 15 months, and a 9-year-old boy implanted after having worn hearing aids from age 18 months; it also details Nucleus implant technology, how the implant is fitted, and how it functions. 

Twins: A Cochlear Implant Study (video--open captioned, 30 minutes)
This videotape follows the language development of three sets of twins up to 4½ years of age (original tape followed the twins through age 3). Each set of twins has a deaf twin with an implant and a hearing twin. 

What to Expect at a Child's Hook-up (video--closed captioned, 60 minutes)
An in-depth explanation of issues integral to fitting the external components of a cochlear implant in the weeks following surgery are included in this videotape. Contents include the initial hookup, programming of the speech processor, including selecting the speech coding strategies and setting levels individual to each child, the child's first listening experiences, expectations for the implant, and troubleshooting of the implant system. This video covers many of the nitty-gritty questions families may have related to what goes into the fitting and the use of an implant. 

Start Listening: A Guide to Pediatric Rehabilitation (video--open captioned, 27 minutes)
This video includes a basic, easy-to-follow progression of auditory development narrated by an auditory-verbal therapist. This video provides information and ideas regarding how to facilitate the process of attaching meaning to sound, and provides a framework for developing listening skills, issues for consideration in developing listening skills, and strategies to promote listening regardless of whether a child is using an oral approach or a Total Communication approach. Strategies are provided related to promoting awareness of sound, providing an optimal listening environment, facilitating vocal play, integrating listening with language and cognition, as well as vocabulary and reading development. 

Nucleus Accessories and Assistive Listening Devices (closed captioned, 35 minutes)
Narrated by a cochlear implant user, this video discusses the various accessories to maximize listening through a cochlear implant. Devices covered include those used to assist with: a) listening in background noise, b) using a traditional phone and cell phone, c) listening to music, d) troubleshooting the implant device, and e) use of FM systems. 

Listen, Learn, and Talk (Auditory Habilitation Program)
See below under Curricula/Training Programs for further information. There is a fee for this product. 

Hear We Go (Auditory Habilitation CD)
See below under Curricula/Training Programs for further information. There is a fee for this product. 

Cochlear Implant Resource Guide: Meeting Children’s Needs at School
This Guide is for individuals who regularly work with children with cochlear implants regarding their needs in educational settings, including clinicians in cochlear implant centers and educational personnel in school settings. It consists of both new and existing materials that have been compiled and organized to correspond with typical issues relating to children’s needs at school. The guide is organized in a loose-leaf notebook to allow easy removal and copying of specific materials. The contributing authors have given permission for their materials to be copied and used in this fashion, to encourage maximum dissemination to school personnel, parents, and others. Cochlear Americas will update the guide periodically with revised and new content.(To order call Cochlear’s Customer Service at 1-800-523-5798. Part number: FUN528, Price $50.00)

Hear We Go (Individualized rehabilitation workbook for teenagers)
This CD contains an easy to install program that allows the therapist to access rehabilitation exercises and generate an individualized rehabilitation workbook for the Nucleus recipient. The workbook is built around 24 different topical interests for older children and teenagers and 3 different auditory skill levels within each topic. It also contains additional topics like Active Listening, Telephone Training, Communication Strategies, and more. It can either be printed or emailed to the recipient it has been designed for. To order call Cochlear's Customer Service at 1-800-523-5798. $25.00 

Sound and Beyond (interactive listening rehabilitation for adults)
This CD is a self-paced, interactive computer listening tool that offers: Pure Tone Discrimination, Environmental Sounds, Male/Female Identification, Vowel Recognition, Word Discrimination, Everyday Sentences and Music Appreciation. There are 5 different skill levels within each topic and over 10,000 sounds, words, and sentences. It reports tracking progress to view and share. One lisence can be shared with up to 3 different users at a time. To order call Cochlear's Customer Service at 1-800-523-5798. $290.00

HOPE (Habilitation Outreach for Professionals in Education)
A comprehensive collection of products and services designed to assist educational personnel in addressing the unique needs of children with cochlear implants. HOPE includes online training for professionals, Cochlear products for professionals and parents, HOPE services, and workshops and seminars. Click here for more information. 

How a Cochlear Implant Works (video--closed captioned, 15 minutes)
In addition to providing basic information about the MED-EL device and the testimonials of two adults and a parent of a deaf child discussing their choice to obtain a cochlear implant, this video provides a clear, animated segment on how a cochlear implant works.

Listening Is Fun Video Kit (guidebook and video)
This is a guide for parents and families of cochlear implanted children. The theme of the guidebook is learning to listen through everyday activities. There is a suggested range of activities which are designed to encourage the child to listen and have fun at the same time. Activities are grouped and color-coded. Each color group activity covers different levels of listening skills. The price is $25.00/set. 

MED-EL hearLIFE Educator CD
This CD contains the following: Handbook for Educators; Handling and Troubleshooting the TEMPO+; HearSay Newsletter; Communication Options; FM Guide; and How a Cochlear Implant Works video. There is a Glossory of Terms and a dynamic table of contents in both the Handbook for Educators and Troubleshooting the TEMPO+. The video clips in Handling and Troubleshooting the TEMPO+ demonstrate some of the information presented in the guide. To obtain the Educator CD, contact, MED-EL Corporation at (888) 633-3524 or http://www.medel.com/.

Riski, Maureen (2008). Abby Gets a Cochlear Implant.
Written by an audiologist. Click here for more information. 

Christiansen, J., & Leigh, I. (2002). Cochlear implants in children: Ethics and choices. Washington, DC: Gallaudet University Press.
Written by two deaf professionals (one with a cochlear implant), this book provides a balanced look at many of the issues surrounding cochlear implants. Much of the information discussed was gathered from the findings of a 1999 Gallaudet University research survey of several hundred parents of children with implants, as well as information from interviews of Dr. Leigh and Dr. Christiansen with several dozen parents of implanted children. The book also includes an excellent chapter, "The Deaf Community: Perceptions of Parents, Young People, and Professionals," as well as an excellent chapter on language development of children with cochlear implants written by Patricia Spencer.

Chute, P., & Nevins, M. E. (2002). The parents' guide to cochlear implants. Washington, DC: Gallaudet University Press.
Written by respected professionals in the field of deaf education and the authors of Children with Cochlear Implants in Educational Settings, this book provides a guide for parents that reflects authors with many years of experience working with implanted children and their families. The book addresses many issues that families may or may not have thought about related to the process of obtaining an implant. The book is honest in highlighting the limitations as well as the benefits of implants, and the controversies related to communication, language, and Deaf cultural issues for children with implants. One chapter is dedicated to quotes from families and provides valuable insights into parent perspectives related to their decision to obtain a cochlear implant for their child. 

Easterbrooks, S. & Baker, S. (2002). Language learning in children who are deaf and hard of hearing: Multiple pathways. Boston: Allyn and Bacon.
This book provides comprehensive insights and tools related to evaluating and planning for language learning with deaf and hard of hearing children. The book acknowledges that deaf/hard of hearing children are diverse and use multiple pathways for language learning based on their residual hearing and learning styles. Included in this book are many useful resources including a checklist of emerging ASL skills and a list of available language tests. 

French, M.M. (1999). Starting with assessment: A developmental approach to deaf children's literacy. Washington, DC: Pre-College National Missions Programs, Gallaudet University.
This book, including the separately bound appendices in The Toolkit, is about assessing the literacy development of children who are deaf. The book examines assessment philosophies and tools that can be used to guide educational planning during the preschool and elementary years. It describes a model of assessment for written language--reading and writing--that covers multiple areas of learning and stresses the importance of conversational language to literacy development. An important premise for this model is that assessment should guide instruction according to the developmental needs of individual children. 

Mahshie, J., Moseley, M.J., Scott, S., & Lee, J. (2006). Enhancing communication skills: Deaf and hard of hearing children in the mainstream. Clifton Park, NY: Thomson-Delmar Learning.
This book is designed to help clinicians who may have little or no experience working with deaf and hard of hearing students (including students with cochlear implants) to understand their unique communication needs and develop clinical skills for working with them. This book provides a useful framework for viewing and assessing children's communication abilities and goals at all stages of language development. It also includes specific assessment and treatment techniques to help develop and improve communication skills and maximize learning. 

Oliva, G.A. (2004). Alone in the mainstream: A deaf woman remembers public school. Washington, DC: Gallaudet University Press.
Gina Oliva writes about her experiences being the only hard of hearing student in the entire school; she refers to it as a "solitary." She felt alone because she couldn't communicate easily with her classmates, but also because none of them had a hearing loss like hers. Years later at Gallaudet University, Gina discovered that she wasn't alone and that her experience was common among mainstreamed deaf students. This book recounts Gina's story, as well as those of many other solitaires. 

Seal, B.C. (2003). Best practices in educational interpreting. Boston: Allyn and Bacon.
This book is a comprehensive overview of the process of interpreting in educational settings. It is a practical guide to the many issues and practices required to provide optimum access to the over 22, 000 deaf and hard of hearing students enrolled in local schools who are dependent upon an interpreter. It emphasizes the changing needs of deaf and hard of hearing students as they move from primary school through college. It is applicable for interpreters who use sign language, cued speech, and oral interpreting. This book is an excellent resource for anyone working with deaf and hard of hearing students including, interpreters, regular teachers, parents, speech-language pathologists, and deaf educators. 

Romoff, Arlene (1999). Hear Again: Back to Life with a Cochlear Implant.
Arlene Romoff began losing her hearing during her college years. It continued to decline gradually until, almost thirty years later, she was left profoundly deaf. When hearing aids no longer worked for her, she elected to get a cochlear implant, a computerized device that stimulates the auditory nerve directly.
 

Agencies and Organizations

Various agencies and organizations exist to benefit the hearing impaired and assist with awareness and education. Please contact these agencies and organizations for more information on the services they provide.

Alexander Graham Bell Association for the Deaf and Hard of Hearing
3417 Volta Place, NW
Washington, DC 20007
202-337-5220    202-337-5220   (V)
202-337-5221    202-337-5221   (TTY)
866-337-5220    866-337-5220   (Toll Free)
E-mail: info@agbell.org
Web: http://www.agbell.org/

Helps families, health care prviders and education professionals understand childhood hearing loss and the importance of early diagnosis and intervention. Offers a bimonthly magazine, financial aid and scholarship programs, publications and educational workshops on childhood hearing loss.

American Speech-Language-Hearing Association (ASHA)
10801 Rockville Pike
Rockville, MD 20852
800-638-8255    800-638-8255   (V/TTY)
E-mail: actioncenter@asha.org 
Web: http://www.asha.org 
Information on cochlear implants can be found directly at:
http://www.asha.org/about/news/tipsheets/cochlear_facts.htm   and http://www.asha.org/about/news/tipsheets/cochlear_quickfacts.htm

Cochlear Implant Association, Inc. (CIAI)
5335 Wisconsin Avenue, NW, Suite 440
Washington, DC 20015-2003
202-895-2781    202-895-2781 
Fax: 202-895-2782
E-mail: lasinger@mindspring.com

CIAI is a nonprofit organization for cochlear implant recipients, their families, professionals, and other individuals interested in cochlear implants. The association provides support and information to anyone interested in information about cochlear implants.

National Association of the Deaf
814 Thayer Avenue
Silver Spring, MD 20910
301-587-1788    301-587-1788 
E-mail: nadinfo@nad.org
Web: http://www.nad.org/

The NAD position paper on cochlear implants can be downloaded from this site. This paper subscribes to the NAD's philosophy of the wellness model upon which "the physical and psychosocial integrity of deaf children and adults is based." Also available from this site is a special issue of the NAD newsletter, The NAD Broadcaster, January 2001, Vol., No. 1, that is dedicated entirely to the topic of cochlear implants.

National Institute on Deafness and Other Communication Disorders (NIDCD)
1 Communication Avenue
Bethesda, MD 20892
800-241-1044 begin_of_the_skype_highlighting    800-241-1044  end_of_the_skype_highlighting (V)
800-241-1055 begin_of_the_skype_highlighting    800-241-1055  end_of_the_skype_highlighting (TTY)
E-mail: nidcdinfor@nidcd.hih.gov
Web: http://www.nidcd.nih.gov/

A cochlear implant information packet can be obtained through this organization's Web site. Information can be directly downloaded on the topic of cochlear implants and many other topics specific to hearing loss.

Network of Educators of Children with Cochlear Implants (NECCI)
Dr. Mary Ellen Nevins, Cochlear Implant Center
Lenox Hill Hospital
186 East 76th Street
New York, New York 10021
212-434-6650 (V)
Web: http://childrenshearing.org/custom/resource_guide.html

NECCI is an organization primarily composed of educators, audiologists, and speech- language pathologists. It publishes a newsletter several times a year. NECCI provides a curriculum workshop about cochlear implants for professionals that also includes a special parent component of the program.

Educational Audiology Association (EAA)
13153 N Dale Mabry Hwy, Suite 105
Tampa, Florida 33618
800-460-7322    800-460-7322 
E-mail: EAA@L-TGRAYE.COM
Web:   http://www.edaud.org/

The Educational Audiology Association is an international organization comprised of audiologists and related professionals who deliver a full spectrum of hearing services to all children, particularly those in educational settings.

Hands & Voices
http://www.handsandvoices.org

Hands & Voices is a nationwide, parent driven, non-profit organization that provides unbiased support to families with children who are deaf or hard of hearing. Support activities and information may include, outreach events, educational seminars, advocacy, lobbying efforts, parent to parent networking and a newsletter.

National University Center for Human Advancement
Institute for Persons Who Are Hard of Hearing or Deaf (IHHD)
http://www.nu.edu/

Affiliated with the National University for Human Advancement, the IHHD serves the hard of hearing and deaf community, early childhood and regular educators, related professionals, vocational rehabilitation counselors, employers, advisors, and administrators who provide education, healthcare, and service delivery for persons who are hard of hearing and deaf and their families. The IHHD is funded by the U.S. Congress to provide personal preparation, education, career, and leadership training opportunities for the 28 million children and adults who are hard of hearing or deaf.


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Resources What is a cochlear implant?  What does insurance typically cover?  What are the ongoing costs?  Connect to our Resources page to view the only online clearinghouse of up-to-date cochlear implant information. CLICK HERE FOR RESOURCES
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