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Sharing Stories

Malinda’s Story

My daughter didn't receiver her CI until she was almost 10 years old. She had basically a profound hearing loss and used hearing aids for 7 years.  (She wasn't diagnosed until she was almost 3 years old, no newborn screening.)  Despite being late diagnosed she was doing well with hearing aids. She had great speech and was mainstreamed.  It was a hard decision, and my daughter was the one that decided she was going to have a Cochlear Implant.  I figured that we needed to give her the chance to hear more.  She had no other medical issues and so the surgery should not have complications.  My daughter did very well with surgery, and 4 days after the surgery she was back in school. We all waited for hook-up day.  I was hoping if we walk away with some hearing similar to her hearing aids, it was worth a try. Well, it sure was a miracle when my daughter was hooked up.  She immediately could hear more and loved her CI.  She heard rain for the first time, and the clock ticking.  She was constantly asking us what sounds were.  My daughter also has a brother that was one year old at the time, she was able to hear him say his first words and communicate with him easily.  Now, three years later, the two love to argue and I have to remind myself this is a good thing she can hear her 4 year old brother talking to her.

Arlys Jorgensen


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Resources What is a cochlear implant?  What does insurance typically cover?  What are the ongoing costs?  Connect to our Resources page to view the only online clearinghouse of up-to-date cochlear implant information. CLICK HERE FOR RESOURCES
Recycling Have cochlear implant equipment or batteries that you can't use?  Could you use recycled equipment?  Connect to our Trash to Treasure page to learn about  your options. RECYCLE HERE
Reassurance Do you feel alone?  Do you want to communicate with people who understand?  Connect to our Community page, where cochlear-implant recipients and their families share stories and experiences. JOIN OUR COMMUNITY HERE
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